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Talking about:
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terminally ill

 
What's your take? (click here)

Leese  

Please help me move my son closer to family and friends who can offer emotional and moral support

When the going gets tough, the tough get going?? Sometimes we need help beyond what we are able to do ourselves. I have found myself at this cross roads in life.

My son and I need to relocate to Michigan as soon as possible but need financial help to do so. My resources are limited so I really need help to make this happen for him. I am actively saving, saving, saving but on a fixed income that makes it a long process but I'm sticking to the "plan".

My ex husband is currently in the hospital with a large tumor *3 tumors in left lung and cancer throughout his body* He also has a pulmonary embolism which is compressed by one of the tumors and the embolism could rupture at any time. He has lung cancer and is terminal in the final stage and only expected to live for one month or less. The doctor wants him to go into the hospitals hospice for care in his final days due to the seriousness of his situation. He is going to die at anytime, it is just a matter of time and heartbreak for my child. I can provide information if necessary to confirm the situation.

Where we live we have no family or emotional support. My twelve year old son wants to go back to Michigan where we do have the emotional support we need and the love family and friends can provide for him. I am here for him 24/7 but it is still very difficult just being the two of us.

It would be such a blessing if maybe someone could help financially so that we can move and make this happen! Any little bit would be a blessing and appreciated beyond belief. I am currently collecting money orders and putting them away to save the money up that is needed to move. The UHaul is $989. for a 10 foot truck, $129.00 for the truck insurance plan and gas, food and hotels while traveling. I am only taking what we absolutley must have which does not include large furniture only the things we cannot part with. Well enough of my moving woes and rambling. Just hoping for help I guess is the entire point. :)

I am saving all the money I can but it just isn't enough to move from the Seattle area to the upper peninsula of Michigan. Please understand our situation and prayers would also be appreciated.

Never in a million years should anyone's child go through what my son is enduring and all I want is for him to be happy and emotionally stable with support of loved ones.

From my heart to yours, Thank you for any help offered.broken heart

reply to Leese
sherryberrys  

Update on Justin

Justin is now in End Stage Renal Failure, his kidney function is down to 7%. He needs a transplant at this point, but his nephrologist says it will never happen due to the Wegeners. So he will be on hemo dialysis for the rest of his life. He goes 3 times a week to Childrens Medical Center in Dallas Tx, we live in East Tx. Its tough, we have no vehicle so we have to rely on family and friends for transportation. Im needing help with gas money. So anyone who may be able to make a donation it would be very much appreciated. Any amount, even a dollar would help. My paypal account is slvance3@gmail.com. If you need our address leave me a message. Thank you all and god love you all.

reply to sherryberrys
Carla StClair  

About Carla StClair

   Greetings all!   well here goes nothing.....

pouring out my heart to you.    im terminally ill.   and need a liver transplant.   problem is.   they wont accept me for a transplant unless my teeth are fixed.  infection can kill me with the antirejection shots.   hey im a single mom with three wonderful kids that need me.    and ive just learned to live!  so please.  follow your heart.  and will you help me so i can see my grandbabies born and finally know what true love is?  thank you .....i can  type really fast and can barter services.   my teeth started breaking off because my body isnt absorbing vitamins anymore.   i dont have much time left unless i can get this taken care of.   I want to live!  please help me....US!

reply to Carla StClair
ethompson1  

Primary Pulmonary Hypertension.

Primary Pulmonary Hypn - need help asap!

in Febuary of 2006 I was diagnosed with Primary Pulmonary Hypertension , and told that I had approxamatly 2-4 years to live.. that is without a bi-latteral lung and Heart transplant.

Since the first diagnosis i have had other doctors oppinions, each ending with the same outcome. I am only 40 years old, but have not been able to work much, I have a 14 year old daughter, whom i love very much. She has chosen to be by my side while i go thru the everyday grind. Her mother has not been a part of our lives for some time, due to drugs and poor choices she is now in prison. 

The problem is this, We have no money whatsoever, I have applied for social security bennifits, but was turned down because of my work history,(not enough billable hours) so then applied for SSI which i havent been able to get yet because I had no birth certificate, well that is now coming but it takes 4 months to go thru after i submit my birth certificiate.

We need a break, we have both struggled so hard this year , it is so frustrating. we were just evicted from our appartment in tempe Arizona, because i couldnt get assistance yet,because of the birth certificate taking so long to arive.. as it stands right now, Her best friends parents have been wonderfull enough to let her stay there for a few days untill i can figure something out.

please if there is anything anyone can do financially or other let me know.

thank you very much

reply to ethompson1
sherryberrys  

Just needed to talk about Justin

 Today has not been a good day for Justin, he has been so sick.. He cant eat and if he does he gets sick.  I hate seeing him like this, wish I could just take it all away and put it on myself.. I love him that much...

 Please, if anyone knows where I miight get some help for some new clothes that fit him let me know. He keeps dropping weight and hasnt got many clothes that fit.. I would greatly appreciate it...

reply to sherryberrys
sherryberrys  

Justin on his 18th Birthday

He is my world!

reply to sherryberrys
sherryberrys  

Update on Justin

Well, I feel very blessed today.  My son turned 18 years old yesterday and his birthday was very special.  There was so much love felt at his birthday party, I dont know how to explain it.  Maybe it is the fact that he is dying and it could be the last birthday we celebrate with him or maybe it was because he is now a man as they say you are at 18.  Whatever the reason, it was very heart felt and I will never forget it.

As for his health, things havent been so good for him. His blood is clotting and he has to have another av fistula surgery because the first one did not take.  He is having to take blood thinners now.  That adds 2 more pills to the 24 he takes on a daily basis just to live.  He is so strong and has been a trooper through all of this.  He was having a problem with anger, but that comes and goes along with being scarred.  We have had to face the fact that he is dying and its been hell for us all... But we move on and meet any battle we have to face together... Our love is stronger than any disease or any problems that come our way.

reply to sherryberrys
ethompson1  

Primary Pulmonary Hypertension - need help asap!

in Febuary of 2006 I was diagnosed with Primary Pulmonary Hypertension , and told that I had approxamatly 2-4 years to live.. that is without a bi-latteral lung and Heart transplant.

Since the first diagnosis i have had other doctors oppinions, each ending with the same outcome. I am only 40 years old, but have not been able to work much, I have a 14 year old daughter, whom i love very much. She has chosen to be by my side while i go thru the everyday grind. Her mother has not been a part of our lives for some time, due to drugs and poor choices she is now in prison. 

The problem is this, We have no money whatsoever, I have applied for social security bennifits, but was turned down because of my work history,(not enough billable hours) so then applied for SSI which i havent been able to get yet because I had no birth certificate, well that is now coming but it takes 4 months to go thru after i submit my birth certificiate.

We need a break, we have both struggled so hard this year , it is so frustrating. we were just evicted from our appartment in tempe Arizona, because i couldnt get assistance yet,because of the birth certificate taking so long to arive.. as it stands right now, Her best friends parents have been wonderfull enough to let her stay there for a few days untill i can figure something out.

please if there is anything anyone can do financially or other let me know.

thank you very much. 

reply to ethompson1
sherryberrys  

Links

Please check out the links to the right of the page to learn more about the medical conditions.. It will tell the early signs and symptoms which could save someones life..

reply to sherryberrys
sherryberrys  

About ForJustin

This is a space dedicated to my son Justin and the medical conditions that are slowly taking his life.. A little over 2 years ago he was diagnosed with a rare disease known as Wegeners Granulomatosis.  It is both an autoimmune and vascular disease to which there is no cure for..  It is treatable and if caught early enough can even go into remisssion.  However, without medication and going untreated the disease is deadly and can take you quickly.  There are differents stages of Wegeners.. It includes the sinuses, lungs, skin, joints, eyes, kidney, heart and all vital organs. 

 

Also Justin is now at Stage 5 Chronic Renal Failure, which is known as "End Stage" Renal Failure.   His life will now consist of dialysis 3 times a week for the remainder of his life, however long or short of time that may be.

 

I want to make people aware of theses medical condtions.  Maybe it could prevent another child to have to face what Justin has at such a young age by letting people learn the early signs and symptoms...   

Thanks for taking the time to visit our space here on Aidpage.

reply to sherryberrys
sherryberrys  

How do you accept that your child is dying

Well, its been a while since I posted... I have had a lot going on... My son I talk about in my previous post with the rare disease is not doing well at all..  Not only has this Wegeners taken its toll on him, he is now Pre Stage 5 Chronic Renal Failure (also known as End Stage).  We just found out he goes this week to have a av fistuila placed in his arm for the purpose of doing dialysis for the rest of his life or until he is able to get a kidney.. The Wegeners has made the kidney transplant out of reach right now, his immune system is still attacking his own organs..

At this point, the doctors cant even say for certain how long Justin will survive and that is hard to swallow..  He is so angry right now, who wouldnt be under the circumstances... But all of his anger he puts on me and towards me, which makes all of this even harder.  But I guess that comes along with being a single mom.... It hurts none the less...

 

There are so many things I wish for him, things he has never done or been able to do.. Like going to a concert, he has never went to one or going to one of his favorite teams basketball or football games.  We have never been on a family vaccation.. My kids did without alot of the "extras" in life, but they never complained or made me feel bad because I wasnt able to provide them with that...

 

Maybe if anyone out there has some tickets laying around that they arent going to put to use you could keep Justin in mind.  He loves the Rap/Hip Hop and Basketball is his passion.. We live and hour away from Dallas Tx and an hour from Tyler Tx...  Thank you for any help you may be able to provide

reply to sherryberrys
joannazenchak  

About joannazenchak

To Whom It May Concern:

 My name is Joanna Zenchak and my mother Anna Maria Gennaro is terminally ill. We found out in February of 2008. She has Malignant Melnoma in her left lung, both her adrenal glands, throughout her stomach and her intestate. She also has bone cancer in her left rib cage, spin and a tumor in her brain.  As of May 24th 2008 my mother has been staying at Memorial West in Pembroke Fl due to a fractured hip that was the result of a new tumor in the left side of her hip. It has eaten away at her bone and has caused a Pathological fracture.  I had to quit my job to take care of her. In the state that she’s in she requires 24 hour a day care. I have been looking for a program to help me with some kind of aid or assistants. Every program that I have contacted and it’s been many, has told me that since my mother is not 60 years of age or older they can not help me. In the case that she was 60 years of age or older they would be able to help.  There has to be some kind of program or someone who can help us. Just because my mother is only 54 years old shouldn’t matter. She’s still terminally ill. Please help me find someone who can give us assistance.  Joanna M Zenchak 954-829-9051joannamz@bellsouth.net
reply to joannazenchak